Over half of America's 9.6 million diabetic retinopathy patients skip recommended eye screenings, with Black patients 47% more likely to have the disease than White patients

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Only 44-50% of the 37 million Americans with diabetes adhere to recommended annual dilated eye exams, despite diabetic retinopathy (DR) being the leading cause of blindness in working-age adults and despite treatments that can reduce severe vision loss by up to 94% when caught early. Why it matters: more than half of diabetic patients skip screening, so one quarter of diabetic inpatients have previously undiagnosed retinopathy discovered incidentally during hospitalization, so vision-threatening DR progresses silently until irreversible damage occurs, so 1.84 million Americans already have vision-threatening DR as of 2021, so the US healthcare system spends billions treating advanced DR that could have been prevented with a $50-$150 screening exam. The structural root cause is that diabetic eye screening requires a separate visit to an eye specialist (not the primary care physician managing the diabetes), creating a fragmented care pathway where the referring physician has no mechanism to ensure follow-through, and the populations most affected -- Black (38.8% DR prevalence), Hispanic (31.0%), and low-income communities -- face the greatest barriers to specialist access including transportation, time off work, and lack of vision insurance.

Evidence

9.6 million Americans (26.4% of diabetic adults) had DR in 2021; 1.84 million (5.1%) had vision-threatening DR (JAMA Ophthalmology, 2023). Adherence to DR screening is as low as 11-50% depending on population studied (PubMed, 2016). DR prevalence: Black 38.8%, Hispanic 31.0%, White 26.4%. Treatments reduce severe vision loss by up to 94% (CDC). 25% of diabetic inpatients had previously undiagnosed retinopathy (PMC DRIPS study). Teleretinal screening programs in community health centers have shown promise in improving screening rates in underserved areas. 50-70% of vision loss from diabetes is preventable with timely care.

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